18 months of remission!!!!!
It has been a long and bumpy road. I am very thankful for my friends and family that have been there for me. Without everyone’s love and support I think I would have lost the will to fight a long time ago. Let’s continue to hope and pray that I stay in remission for the rest of my life. I would like everyone to know that I still have leukemia and just because I appear to be healthy, it does not mean that I am. I still have cancer cells in my body and there is always the possibility that the leukemia could return without warning at any given time. Life does go on and we have to deal with this, we just know that it is back in the shadows and is always there. I hope that our story has drawn attention to the need for bone marrow donors, blood donors, and also educated people on leukemia and other blood cancers. My best chance of survival is a bone marrow transplant. City of Hope searches each week for a match, over the past 18 months they have only found one possible match with a cord blood, however, because I am doing good and in remission they said that they didn’t want to take the chance because the risks are higher. Unfortunately, if another patient is a match for that specific cord blood and they need it right now, they will receive it.
I have stated this a thousand times and I will say this again, “I can not stress the importance of being a bone marrow donor”. Recently one of our friends was selected for the process of being a bone marrow donor for a complete stranger. She is still going through the process to see if she will be able to donate. What a great thing to be able to say that you saved someone’s life!
Recently another one of our friend’s son was diagnosed with cancer. He is only 3 years old and has Stage 4 Neuroblastoma and started chemo this week. During his journey, he will be receiving blood transfusions, so again the need for blood donors is very important.
Now Relay for Life is coming up, May 17th at Paloma Valley High School in Menifee. So, we are going to start pushing for team members to sign up!!! Please make sure you sign up as soon as possible! Our goal is to have each member raise $100. We will be having team fundraisers to help raise the $100 per member. Last year we raised $10,000 with 90 members!
For those that don’t know Relay for Life, raises cancer awareness and research funding for all types of cancers. We chose to start a team with the Relay for Life because it helps so many people and it doesn’t focus on just one cancer. If you can’t join us for the Relay, then please make a donation to help us reach our goal. If you have any questions, please feel free to contact us. We made a huge impression on Relay last year and we would like to make even a bigger impression this year!
It is hard to believe that tomorrow will be a year ago that I left the hospital after completing my last round of chemotherapy. A lot of things have happened since the day I was diagnosed. Everyone talks about how bad our society has become, but throughout this journey we have experienced such great generosity from our friends, family, and even complete strangers.
Through out this holiday season, please enjoy the time with your family and friends and make sure you capture these moments so that you can always remember them.
During this time we have gained some new friends and we have lost a few. We had the pleasure of meeting Madeleine Bonta while receiving chemotherapy. She was a beautiful young woman that fought so hard but unfortunately she recently lost that battle, only 19 years old. http://madeleineblogger.blogspot.com
A little boy, Kane Strong, that we meet lost his leg due to cancer and is surviving at a great cost. Kane continues his treatments and is a trooper! He has even made friends while receiving treatment to help him through his journey. http://www.gofundme.com/5mcza4
I hope that everyone has a Merry Christmas and a Happy New Year’s! Please be safe and don’t drink and drive.
It is hard to believe a year ago today, that we didn’t know if I would have another Father’s Day. Every holiday that comes up is very special to us and we treat it as though it may be our last. We are grateful to our friends, family and supporters that have been with us through this bumpy ride. There are so many fathers that are not here today, but there are so many fathers that are and I can say that I am one of those. Happy Father’s Day to all of the dads out there and may we have many more days together like today.
This is our first year as a team and we plan on having Team Sal every year. Our family has participated at the Menifee Relay over the past several years, however, last year Sal was diagnosed with Acute Monocytic Leukemia about a week before the Relay. Sal was in the hospital on and off for over 7 months, during this time we would discuss what we were going to do during the next Relay?..well the time has come and we have created our own team. Our goal was to create a team with all of our friends to help celebrate the life of Sal and many others like him. He has been in remission since July and he continues to fight cancer. With the help of our friends and family we want to show cancer that Team Sal isn’t going to give up!
At Relay For Life, our team will camp out overnight and take turns walking around the track to raise money and awareness to help the American Cancer Society create a world with less cancer and more birthdays.Our team is doing our part in the fight against cancer.
By joining Team Sal you show Sal and others like him that he has support in this terrifying fight! We know that not everyone can join us during the actual event, however you can show your support by donating. Please join our team or make a donation, because saving lives starts one team, one participant, and one dollar at a time.
Please share the news report on Sal that was aired tonight on CBS2. We wanted to make sure people are aware of the need of a bone marrow donor. If you would like to sing up as a bone marrow donor, please go to www.bethematch.org.
Here is the link for the TV interview
Today has been an adventure. Cheyene had a game this morning and her team won 12 – 2. We were planning on going to see Sal this afternoon at the hospital but the expedition broke down so by the time it was fixed I just wanted to stay home.
Sal’s numbers are starting to drop. Hopefully his platelets won’t drop too much because the more platelet transfusions the more antibodies he will get from the transfusions and this could be harmful.
If you would like to go see Sal, please let us know. He isn’t in pain like he was last time, however, please make sure you do not have a runny nose, sore throat or anything else….we don’t want sepsis this round. Also, if you work for the Riverside County Sheriff’s we would really like help with Sal’s catastrophic time bank. We received only two donations and this week will be his last paycheck. Since May 5, 2012 he has used up all of his vacation and sick time and this last paycheck won’t be a full paycheck. Once he goes on disability we will have to pay around $1200-1400 a month for our health insurance and he will hopefully receive up to 80% of his pay. We are still waiting to hear if the disability insurance will approve him for this amount. We should know something next week.
Blood counts for today
White Blood count 3.2
Last chemo bags tonight! The kids came up this afternoon after Jacob’s basketball game. I went and got everyone McDonalds for dinner while they watched diary of a Whimpy kid . Next week sal’s counts are going to start to go down and he will start neupegen shots on Monday. This is a white blood cell booster that should help increase his counts faster. The shots are in his stomach and hurt!
He hasn’t gotten sick on this round yet, he has only had problems sleeping because of having to pee every hour. We will keep everyone updated
Sal will be going in for his next round of chemo. This will be his second consolidation, so we only have two more consolidations after this. We are still looking for a bone marrow transplant donor. I don’t know how to stress the importance of finding a match. If we don’t find a match soon, the chances of Sal getting leukemia are very high. We need to fnd a match before he finishes his four rounds of consolidation. Once he is done with his consolidation he won’t be able to do anymore and the leukemia will eventually return. Please remember, even if you don’t match Sal, you might match someone else in the database that is looking for a match. How great would it be, to be able to help save a life! Please sign up today at www.bethematch.org or www.marrow.org